Welcome
The National Haemoglobinopathy Registry (NHR) is a database of patients with red
cell disorders (mainly sickle cell disease and thalassaemia major) living in the
UK. This new database collects data which is required by the Department of Health
from haemoglobinopathy centres. The central aim of the registry is to improve patient
care.
If you are a patient, once you have read the
patient information leaflet you need to approach your treatment centre to
be added to the registry. Without your information we cannot direct the funding
necessary to improve services. The Sickle
Cell Society and UK Thalassaemia Society
strongly encourage patients to give their consent to be added to the registry.
NHR Newsletter
To view the latest NHR newsletter
click here.
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