Welcome To The NHR

The National Haemoglobinopathy Registry (NHR) is a database of patients with red cell disorders (mainly Sickle Cell Disease and Thalassaemia Major) living in the UK. This new database collects data,which is required by the Department of Health from Haemoglobinopathy centres. The central aim of the registry is to improve patient care.

National Haemoglobinopathy Registry Annual Report 

 Click the image above to view the National Haemoglobinopathy Registry Annual Report for 2015/16

Log In To The Secure NHR System.

Click the image above to log in (NHS N3 network access required)

Data

Please see below for a list of summarised reports from the NHR. These reports are updated periodically, the last update was on the 21st July 2017

Click the links below to open the NHR reports:
Diagnosis by Gender 44KB
Number of Patients by Centre 50 KB
Number of Patients by Diagnosis 44 KB
NHR Patients Numbers Map 79 KB

Information

See below for information about the NHR

Click the links below to open the information:
NHR Patient Information Leaflet 252 KB
NHR Dataset 241 KB
NHR Steering Group 85 KB
NHR Annual Report 2013/2014 72 KB
NHR Annual Report 2014/2015 4 MB

NHR Annual Report 2015/2016 6 MB

Contact Us

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