National Haemoglobinopathy Registry

Welcome

The National Haemoglobinopathy Registry (NHR) is a database of patients with red cell disorders (mainly sickle cell disease and thalassaemia major) living in the UK. This new database collects data which is required by the Department of Health from haemoglobinopathy centres. The central aim of the registry is to improve patient care.


If you are a patient, once you have read the patient information leaflet you need to approach your treatment centre to be added to the registry. Without your information we cannot direct the funding necessary to improve services. The Sickle Cell Society and UK Thalassaemia Society strongly encourage patients to give their consent to be added to the registry.


NHR Newsletter


To view the 2012 NHR newsletter click here.
Click here to view the newsletter



Log-in to the NHR System (NHS network only)


Click here to Log-in to the NHR Registry System
Click here to Log-in to the NHR Registry System